Otsuka Pharmaceutical's Samsca® Approved in Japan as the World's First Drug...
(Tokyo, Japan) - Otsuka Pharmaceutical Co., Ltd. (Otsuka) announced it has become the first company in the world to obtain regulatory approval for a pharmacological treatment of autosomal dominant...
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Research Grants Awarded
To support work being done to find treatments and a cure, we have awarded 15 research grants to PKD researchers. We will spend nearly $2.4 million over the next two years on these grants. The awardees...
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Dr. Gregory Germino Will Be Featured Speaker for PKD National Convention
The PKD National Convention, taking place June 20-22 in Kansas City, Mo., is fast approaching. The PKD Foundation is excited to announce Dr. Gregory Germino will be the featured speaker for the event....
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Making a Difference for Patients: The Kidney Community Rallies on May 1, 2014
The PKD Foundation is pleased to give voice to the more than 20 million Americans with kidney disease through its participation in Kidney Community Advocacy Day. Today, the PKD Foundation will join 14...
View ArticleLeading PKD Experts to Present at PKD National Convention
The PKD National Convention provides numerous opportunities to learn about PKD from the leading national clinicians, researchers and nephrology experts. The medical professionals and researchers will...
View ArticlePKD Scientists Gather for Research Symposium
Earlier in May, nearly 200 PKD scientists and physicians from around the world came together earlier this month at the Jared J. Grantham Symposium on "Future Directions of PKD Research." The PKD...
View ArticleInput Needed From Patients and Advocates Regarding Gap Between Diseases and...
The House Energy and Commerce Committee has launched the 21st Century Cures initiative to draw attention to and close the glaring gap between the number of diseases and the number of treatments...
View ArticleNew Study Finds Transplant Recipients with PKD Have Lower Cancer Risk
A new study published in the Journal of the American Society of Nephrology finds that patients with PKD may be less likely to develop cancer than those with other types of kidney disease. Kidney...
View ArticleOtsuka Initiates Phase 3 Clinical Trial of Tolvaptan in Patients with ADPKD
Otsuka Pharmaceutical Development & Commercialization, Inc., announced on Wednesday, June 11, that patient enrollment has begun for a new Phase 3b study of tolvaptan for adult patients with...
View ArticleElizabeth Bruening Lewis
Elizabeth Bruening Lewis, author and daughter of PKD Foundation co-founder Joseph Bruening, passed away on June 7. Lewis's father and Dr. Jared Grantham started the PKD Foundation in 1982, after she...
View ArticlePKD Foundation Among Top 30 Grant-Giving Disease Foundations in 2014
Genetic Engineering & Biotechnology News published a list of the top 30 nonprofit disease foundations that give grants and other awards for research — and the PKD Foundation made the list at...
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PKD Foundation's Ray Smith Honored as CFO of the Year
Congratulations to the PKD Foundation's CFO, Ray Smith. Ray was honored by the Kansas City Business Journal as CFO of the Year in the nonprofit sector. Ray was honored recently at a reception and poses...
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Statins Given Early Decrease Progression of Kidney Disease
AURORA, Colo. - Results from a study by University of Colorado School of Medicine researchers show that pravastatin, a medicine widely used for treatment of high cholesterol, also slows down the growth...
View Article40-Year-Old Mom with PKD Becomes New Orleans Saints' Cheerleader
Kriste Lewis, a 40-year old mom with polycystic kidney disease (PKD), has become a New Orleans Saints cheerleader.Lewis, who is a dance instructor, decided to fulfill her lifelong dream when she turned...
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PKD Foundation Sponsors International PKD Research Conference
As part of the PKD Foundation's Accelerating Treatments to Patients program, we fund PKD-related scientific meetings that bring experts together and provide continuing education for health...
View ArticleHALT-PKD Study Finds Rigorous Blood-Pressure Control Could Slow Cyst Growth...
A presentation regarding the results of the HALT-PKD clinical trial was shared this morning at the American Society of Nephrology (ASN) Kidney Week meeting.The HALT study is important to the PKD...
View ArticleOPTN/UNOS Board Approves Policies on Living Donor Evaluation and Consent,...
St. Louis – The OPTN/UNOS Board of Directors, at its meeting November 12-13, approved policies to ensure thorough and consistent processes are used in the medical evaluation and informed consent...
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PKD Foundation Welcomes New Chief Scientific Officer
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding...
View ArticleEarly Data Suggest Kidney Allocation System Meeting Key Expectations
Kidney transplant data from the first four weeks after implementation of the new kidney allocation system (KAS) suggest that a number of key outcomes are meeting expectations, while other trends merit...
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Treatment for ADPKD Approved in Canada
JINARC® (tolvaptan) has been approved in Canada as a treatment for autosomal dominant polycystic kidney disease (ADPKD). JINARC® was discovered in Japan by Otsuka Pharmaceutical and was first approved...
View ArticleCHMP Recommends JINARC® (Tolvaptan) for Approval in EU: The First...
Otsuka Pharmaceutical Co., Ltd. announced today that the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has recommended JINARC® (tolvaptan) for approval....
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Cincinnati 5 Year Old Writes a Book About His "Bumpy Kidneys"
RenewableEnergyWorld.comLogan Wiesman, now 5 years old, found out he had bumpy kidneys when he was just 2. He told his mom that his back was hurting, but he didn't know why. After several tests, they...
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Saintsation Kriste spoke at Polycystic Kidney Disease Foundation's Leadership...
Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two...
View ArticleMayo Clinic Living-Donor Kidney Transplant Webinar
Join Mayo Clinic for a live webinar on living donor kidney transplant on Tuesday, April 14 from 12-1 p.m. CDT. This one-hour, interactive webinar will give an overview of living-donor kidney transplant...
View ArticleALERT: Forskolin Dietary Weight Loss Supplements Can Lead to Accelerated...
It is vital to check with your doctor before taking any supplements or medications. Forskolin has been in the news recently as a weight loss supplement. Please note, forskolin is best avoided by people...
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Award-Winning Chef Michael Psilakis to Compete on Chopped All-Stars...
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he...
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Food Network's One-on-One Interview with Chopped All-Stars Part 3 Winner,...
Chef Michael Psilakis won part 3 of the Chopped All-Stars Tournament and will be in the finale with the chance to win $75,000 for his charity of choice, the PKD Foundation. Food Network did an...
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Treatment for ADPKD Approved in Europe
TOKYO—(BUSINESS WIRE)—Otsuka Pharmaceutical Co., Ltd. announced today that the European Commission has granted marketing authorisation for JINARC® (tolvaptan) for the treatment of ADPKD in adults who...
View ArticleFDA Issues Letter of Support for TKV as ADPKD Biomarker
TUCSON, Ariz., June 1, 2015 – The Critical Path Institute (C-Path) announced today that the U.S. Food and Drug Administration (FDA) has issued a Letter of Support to C-Path's Polycystic Kidney Disease...
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New drug delivery system may open up treatments for polycystic kidney disease
From Medical News TodayA new method that allows antibodies to penetrate cyst walls may open the door for already approved drugs to target the growth factors that drive polycystic kidney disease.Read more
View ArticlePKD Foundation awards fellowships to promising PKD researchers
We have selected five outstanding researchers to receive the 2015 PKD Foundation Fellowships. These fellowships honor early-career scientists whose achievements and potential identify them as rising...
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Frequent Business Traveler magazine makes a gift to the PKD Foundation in...
We’re excited that Frequent Business Traveler magazine is honoring their annual GlobeRunner Award winners through a donation to the PKD Foundation, and encouraging winners and readers to do the same....
View ArticleHelp the Foundation win $500,000 and technology support from Microsoft!
Vote for the PKD Foundation on social media by Aug. 31 in Microsoft's #UpgradeYourWorldcontest. Public voting will determine the winner so please vote every day using #UpgradeYourWorld and #Vote.For...
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Celebrity chef brings more national awareness to PKD on Food Network's Guy's...
Famed chef and PKD Foundation friend Michael Psilakis is back at it.Michael – who recently competed in Food Network's Chopped All-Stars and came close to winning cash for the PKD Foundation – returns...
View ArticleFDA issues draft guidance for TKV
We continue to make good progress toward FDA support for TKV as a bio-marker for trial enrichment. I recently let you know that the FDA issued a formal letter of support to C-Path's PKDOC (PKD Outcomes...
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PKD Foundation CEO appears on The Now KC report about kidney donation
Our CEO, Jackie Hancock, Jr., was interviewed by The Now KC as part of their story on a Kansas City man using Facebook to find a kidney donor.Watch the interview and read the story here.
View ArticleValen Keefer helps raise awareness on #PKDAwarenessDay
As Valen was driving through Las Vegas with her car decorated to celebrate #PKDAwarenessDay, she was spotted and interviewed by Las Vegas Now. Read the full story and check out Valen's car below. A...
View ArticleJinarc® (tolvaptan) has been approved in England and Wales as a treatment for...
Breaking news: JINARC® (tolvaptan) has been approved in England and Wales as a treatment for autosomal dominant polycystic kidney disease (ADPKD).We are very excited for these ADPKD patients to have...
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East Texas family battles PKD
Ashley Stamps shared her story on KYTX, a CBS affiliate in East Texas. Watch the interview and read the story here.
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PKD Foundation staff and advocates visit Capitol Hill
PKD Foundation staff and advocates spent two days on Capitol Hill, meeting with elected officials about how they can help fight PKD. Read a summary of their trip
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Family hopes stranger's kidney will match for donation
Erika Bragan and her family share the unique way they connected with a potential kidney donor.Watch the Bragan family interview with ABC Action News in Tampa, Fla.
View ArticleNIH funding propels collaboration among top PKD research centers
The National Institute of Diabetes and Kidney Diseases (NIDDK), part of the National Institutes of Health (NIH), has awarded four institutions multi-million dollar research grants to support centers to...
View ArticleMini-kidney organoids re-create disease in a lab dish
Stem-cell biology and gene editing advances offer hope for kidney regeneration, drug discoveryMini-kidney organoids have now been grown in a laboratory to re-recreate human kidney disease in a petri...
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PKD Foundation helps fund ASN Foundation for Kidney Research Fellowship...
The PKD Foundation has entered a new partnership that will attract more early-career scientists to PKD. A contribution of $500,000 to the American Society of Nephrology (ASN) Foundation for Kidney...
View ArticlePresident Obama signs the Omnibus Bill
Under the Omnibus Bill, the National Institutes of Health (NIH) will receive just over $32 billion. This is a $2 billion increase. The PKD Foundation strongly urged Congress to accept this amount....
View ArticlePKD Foundation support co-writes op-ed to promote kidney research
Bill Brazell, long time supporter of the PKD Foundation, co-wrote an op-ed piece with Newt Gingrich to promote kidney research.Read the article here
View ArticlePKD Foundation awards 15 grants to advance research
In January, 2016, our Scientific Advisory Committee (SAC) reviewed 51 grant applications, and selected 15 outstanding grant proposals to receive a total of $2.4 million over the next two years. This...
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